Saturday, 16 September 2017

Finding myself.

As a child i had an ordinary happy childhood i could ever ask for. i was a bit social and will play with my friends. i was however born with a Genetic disorder called Neurofibromatosis (type 1) through out my early chidhood i was not greatly affected by it.

i had a normal schooling, it was later on that i began to feel and notice how different i was among my peers at school. suddenly i was becoming weaker and weaker, i felt how unwell i was, but tried covering up' silly right ? i was focus on having an education so i had to act "normal" so as not to raise any "red flags". as time goes on my body was starting to give up on me, at school i found myself taking permision to go home even before school closes it was that bad.

i was no longer active as i was before,  i had slowly become lazy and will stay away from stressful activities, at this time i had a tumor growing in my right leg caused by my genetic disorder, i began seeing the doctors i was daignose and had surgeries and eventully my leg was amputated. i had two types of tumors called: plexiform neurofibro and neurofibrosarcoma.

all of this happend about thirteen years ago, it has been a journey and i learned alot about myself. its like finding myself, soo much so that looking back i sometime wonder with what i know now will have pushed myself that much ? or will i have done things differently...

i have chronic illnesses, infact invisible chronic illnesses. it hard looking from outside to know how sick i am, that is what makes it "invisible" . people living with invisible chronic illnesses are most of the time misjudge because we dont look "sick" its what we have to deal with. its a challenge living with mutiple health conditions that is known to have no "cure", you never know what is going to happen next when it comes to your health. it takes your faith in the Almighty, your hope in life, courage and peseverance to go through each day. and ofcouse being nice and kind to yourself, we should never push ourselves beyond what we can handle, our body already needs enough enegy to stay alert...


Salaam, Peace...

Saturday, 9 September 2017

September is hydrocephalus awareness month

hello all, have you ever heard of the word hydrocephalus before ? well if you have not heard about it until now, the truth is you are not alone. so what is hydrocephalus 





Hydrocephalus is the buildup of fluid in the cavities (ventricles) deep within the brain. The excess fluid increases the size of the ventricles and puts pressure on the brain.
Cerebrospinal fluid normally flows through the ventricles and bathes the brain and spinal column. But the pressure of too much cerebrospinal fluid associated with hydrocephalus can damage brain tissues and cause a large spectrum of impairments in brain function.
Although hydrocephalus can occur at any age, it's more common among infants and older adults.
Surgical treatment for hydrocephalus can restore and maintain normal cerebrospinal fluid levels in the brain. A variety of interventions are often required to manage symptoms or functional impairments resulting from hydrocephalus.
visit www.hydroassoc.org to learn more about this condition.

i have hydrocephalus, my diagnoses is dated back to the year 2009. i have not had any treatment yet. but just this year i have been aproved for surgery.
there are no known cure for hydrocephalus the only available treatment is through brain surgery. there are two types of hydrocephalus :  comunicating hydrocephalus and non-comunicating hydrocephalus. 

i have a noncomunicating hydrocephalus, also known as obstructive hydrocephaluc. caused by a blokage to the pathway of the flow of (CSF), cerebrospinal fluid.
a blokage can be due to a number of factors, mine is caused by a brain tumor.
hydrocephalus is a life long chronic condition. its never a disease.